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For Everyone...

I'd like to spread the word about a Genetic Disease called Progeria. It effects 1 in 8 million children around the world. So basically, the facts are that there are somewhere around 35-40 children that suffer from this rare but fatal disease. Now, I'm sure a lot of you have seen the movie Jack starring Robin Williams. I'm guessing he had this disease maybe something similar minus the special facial/skin features in these children, but anyways, the disease ages children 7 or 8 times faster than a normal child. Most children dont live through their teen years (average lifespan is 13 years) and are normally diagnosed at 18-24 months.

You can get MUCH more information from The Progeria Research Foundation (PRF). This is a very good cause and I suggest you just take a look at it and pass along the information to others. The research will not only help these children, but it can help you. They're finding out how aging in the heart and organs happens and have actually found the gene in the DNA code for Progeria.

taken from http://markandkez.homestead.com - picture at the 2002 Reunion

Comments

( 8 comments — Leave a comment )
femme_rapier
Jul. 28th, 2004 07:11 am (UTC)
what's up kim, its georgette. I got a new Livejournal (mostly because all my new drama nerd friends have one too) but yeah, add me to your friends if you want because I can't read any of your entries til ya do! much love
missescargot
Jul. 28th, 2004 08:35 am (UTC)
Iiiinteresting. Haha, I'll add ya
femme_rapier
Jul. 29th, 2004 10:54 am (UTC)
hooray!
love_to_help
Oct. 17th, 2004 08:57 pm (UTC)

Http://www.teenlight.net

Teen? Need Some Help? Want To Help Others? Check It Out :)
(THIS IS NOT A RELIGIOUS SITE, THIS IS A HELP SITE! ALL TEENS ARE WELCOME!)
(We apologize if you are not a teen, or if you dont need help, this message was accidental in your case.)
fyatuk
Mar. 22nd, 2006 04:15 am (UTC)
obviously I'm bored..
Since this is a 2 year old entry...

But since I just rewatched the "Dark Angel" series and you mentioned progeria, I thought I'd mention the connection. In the TV show, progeria affected several members of the X series soldiers, including escaped X5 Brynn and the X7 version of Max...

And yes, I'm random journaling, so enjoy the randomness :D
missescargot
Mar. 22nd, 2006 04:17 am (UTC)
Re: obviously I'm bored..
you do realize that progeria is a disease that children get. If an older person gets something similar, it has another name (i forget at the moment). :-)
fyatuk
Mar. 22nd, 2006 04:34 am (UTC)
Actually I didn't know that. Learn something knew every day. And if it wasn't so late and nearly my bedtime I'd be searching the internet to find out what.

And I meant to say it was a progeria like disease in Dark Angel. They specifically mention its something similar, but not.
ihopeyourewell
Oct. 9th, 2006 11:01 pm (UTC)
( 8 comments — Leave a comment )

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